Our
Families

Children and Youth with Medical Complexity have a wide variety of conditions and diagnoses - with no single definition to encompass them all. Most children and youth with medical complexity have multiple chronic conditions, functional limitations, high healthcare use, and a need for ongoing caregiving. 

  • Less than one percent of children live with medical complexity and over two-thirds have a single health chronic condition.

  • Having a child with medical complexity does not discriminate based on income, race, sex or geography.

  •  About a third of children with medical complexity receive medical technology assistance.

  • Children with medical complexity depend heavily on informal and unpaid caregiving by family members.

Family Voices